Day 71 was the day of our third and final twitter chat in conjunction with WeLDNurses.
I’ve waxed lyrical about them before, and am going to repeat myself again, because sometimes we all need to repeat ourselves several times for people to take notice:
I was reflecting on how strong the grass roots/frontline/on the ground response has been to #107days and #JusticeforLB. Amongst the families, carers, dudes, researchers, advocates, activists and academics who have stepped up, along with many more, there is one professional group who (personal view here) have really risen to the challenge of learning from what happened to LB. That’s not to say they’re the only group, and I’m not singling them out as favourites, rather acknowledging that as a professional group, nurses of people with learning disabilities, could have responded with anger, or shame, or disbelief, or avoidance, or many other ways. Instead many learning disability nurses have embraced our campaign and fully supported it.
That was the introduction from Day 43 Death by Indifference, but they also previously adopted Day 15 for Epilepsy Management. Today’s chat was focused on Working together with families, carers and people with a learning disability.
As has been the case with each of these chats there was a real energy, frenetic pace in fact. An honest and open discussion between those working in learning disability services, especially learning disability nurses and educators, but also some social workers, some students and of course a large number of parents, carers and JusticeforLB supporters who I can’t neatly label.
You can read a full transcript of the discussion here. Key themes were around listening, really listening, starting with the person, how to handle conflict and an acknowledgment that there really is no such thing as a ‘difficult family’, simply people worn down by an unresponsive system.
The characteristic of these chats has been the contribution, the openness and of course the banter. I for one will miss them, although hopefully many of us will continue to join in with #WeLDNs chats, long after #107days.