Day 51: 107k for #107days

Day 51 was adopted by the amazing Jane Youell. Jane got in touch early in the #107days campaign to say that she was thinking of doing a run for LB. Those who’ve followed closely will have been blown away from the marathon runners efforts here, here and here. Jane wanted to do it a bit differently, she decided to run 107k for LB, and blog her journey, here’s why:

I heard about the #justiceforLB campaign from my PhD supervisor. She kept dropping it into conversation each time we met asking me to take a look at it as it was important. I ignored her advice. But, as she keeps telling me she is always right and to ignore her is an error 🙂 But this kind of thing happens quite a lot, more than you’d think probably. People who know you have a child with autism seem to think that all you want to read is books about autism, you only want to watch films about people with autism, you only read articles about autism. Well, I don’t really. Not unless I can guarantee a happy ending, which most of the time I can’t, so I will just float around in my little bubble and pretend the world is just and kind thank you very much.

But reality always seeps in somehow and I was beginning to think around notions of oppression and care in my own research and I could see the parallels with the little I knew of the #justiceforLB campaign so I started to look at some of the blogs. I couldn’t read them without crying and getting more than a little angry.  So, I did what I always do when I feel angry and teary I phoned my best friend for a good swear about the injustice of the world. We both have children who are going to need life long care of some sort which will need to be provided by outside agencies – we are blooming fabulous but we can’t go on forever – I advised her not to look at the case as it would upset her. She ignored me and we hatched a plan to get involved. We wanted to raise awareness and some money in support of the #107day project. As I had some trainers and a desire to run again we decided that the best way to support the #107day project was if I could run 107k. In a fit of over optimism – we actually believe we are a kind of social care Batman and Robin – and only a loose idea of how far 107k is, it was decided that running 10x10k and 1x7k on 11 consecutive days was the way to go.

So why am I involved in the #107 days #justiceforLB campaign? Because I am a Mum and am in awe and full of admiration for Sara and her family, because all the young dudes really matter, because I have a moral, ethical and social responsibility to make a stand against injustice, because I want to raise awareness and if I can some cash and because my best friend Batman dared me to.

JaneDay1-3

Jane has been supported by family and friends and you can follow her journey on her blog or twitter, today is Day 5 of 11, 50k complete, 57k to go, so be sure to swing by and give her some moral support. Here’s the evidence for Day 1, 2 and 3 with her personal trainer Maisie, who has cycled or run with her Mum each day that she could. Awesome.

Day 24: An Exmoor marathon #107days

Last weekend our first #JusticeforLB marathon was run by Ruth on Day 18 and tomorrow sees Deborah and Daniel treading the streets of London in the London Marathon, but today, Day 24 belongs to Lucy Skye.

Lucy is running the Exmoor Marathon, she isn’t running for money, although feel free to donate, but is running to raise awareness of LB and the treatment of many others like him. Here’s what Lucy had to say:

There weren’t many buses to be found on Dartmoor during training for this marathon (plenty of mud though) but whatever the length of the run, #JusticeforLB was never far from my thoughts. I know I feel powerless to make the changes to systems/people/organisations that so desperately need to happen, and if that’s how I feel, I know it’s only a fraction of what others are feeling. But I can also see what joy can be gained and maintained in small things, how we can freely add another bit to this puzzle, and how they all add up to something so much more.

And so the last long run is now done, and the tapering before the race has started…it’s this waiting around bit I find hardest.

I can plan it all out to the ‘n’th degree, but I’ve still got to go and do it, and I just want to get it done. I’m not going to lie, I’m scared I won’t finish and that it will all be too much. But there are more important things to keep me going:

  1. I wish I’d met LB. He sounds like the sort of guy who got things done. In his way and his time. So that’s the first thing I’ve got in mind – to take my time and just enjoy the view. I’ll get there when I get there.
  2. Second, that I need to laugh my way round. Probably not all the way or I’ll run out of breath and conk out. But I need to find things to laugh about, and think of things that will make me laugh. There’s no point in doing this if I don’t enjoy it.
  3. Third, that I’ll try and share those two things with as many people as possible. And how, and why. Because then they’ll know about LB too and we can all laugh in celebration of him up and down the hills and out to the sea.

And I’ll keep an eye out for buses. Just in case.

Please take a few minutes to visit Lucy’s facebook wall and wish her luck and thank her for her efforts as Lucy carriers the virtual #JusticeforLB running baton forward.

LucySkyeMud

Day 21: Looking forward to the weekend #107days

Day 21 was adopted by Deborah Faulkner, who joins the virtual #JusticeforLB running team, with Ruth (Day 18) and Lucy (Day 24). Deborah is running the London Marathon on Sunday, so if you’re down supporting or watching on the TV keep an eye out for her and give her a cheer. Here’s why Deborah is supporting #107days:

I heard of Connor’s story through the wonderful world of Facebook. A friend shared a link to Sara’s blog and I read it with sadness and horror. I have very little experience of autism, epilepsy or the provision of care that is in place for those with these conditions. I am, however a Mother of four children, all with health issues that have required me to put my absolute trust in the medical profession. Several times I have placed my child’s life in the hands of people I don’t know, but who I believe will do their utmost to protect them and keep them safe from harm.

It is beyond my imagination to comprehend how I would feel if one of my children were to die. To have a child die through someone’s negligence and in such tragic and preventable circumstances must be utterly devastating.

I got a place to run the London Marathon unexpectedly this year. It came as quite a surprise and I hadn’t been planning to run for a particular charity. When I read about the Justice for LB campaign I decided to dedicate my run to this important cause. I hate asking people for money (but please give if you can!), so my aim is to raise awareness by wearing #JusticeforLB on my back and front throughout the marathon. Due to the not very speedy nature of my running, thousands of people will be overtaking me so hopefully they will notice the hashtag and be inspired to look it up after the race. You never know- I might even get noticed by the TV cameras! I personally will be thinking of Connor and his family during the tough times throughout the marathon and use their strength as an inspiration to carry on to the end.

Obviously none of this will relieve the pain and suffering that Connor’s friends and family are experiencing every day. It is a very small thing that I am doing, but I believe that if there is anything we can do to be a voice for the vulnerable members of our society, we should do it.

LdnMarathonLB

Postscript

Daniel Marsden got in touch with us having read the post about Deborah running the London Marathon for us, having already been involved via WeLDNurses. Daniel had some space on his shirt, and wanted to support us too, along with his other causes. So that’s Daniel and Deborah running on Sunday, spreading awareness of #JusticeforLB and hopefully causing one or two new people to think about people with learning disabilities, and the rights afforded to them. Daniel’s shirt is below, so if you see him or Deborah give them a shout and a wave for us all.

DanielMshirt