Day 16: Ruth’s story #107days

Day 16 was adopted by a pair of sisters in Northern Ireland. Theresa and Ruth (not their real names) were touched by LB’s story and got in touch to ask if it was ok to share a positive experience of an assessment unit. We’re delighted to be able to share their story, and very pleased that Ruth had the life saving support of the hospital assessment unit. Theresa shares their story below:

So here we go with our story. My sister Ruth is two years younger than me. Throughout our lives we have shared many high points – the first time she travelled to school by public transport, the first time she went on holiday with her friends, when my two daughters were born. But we have also experienced tough times.

When Ruth was in her early twenties we secured a place in newly opened supported housing only five minutes away from us. My parents felt all our prayers had been answered. All went well for a couple of years. The manager had a lot of experience with people with a learning disability, however he retired and our nightmare began. A new manager arrived. She had no experience working with people with a learning disability, but had done lots of research at university. She came with new ideas including person centeredness, but she didn’t really understand Ruth and her needs.

The new manager felt Ruth had the right to choose the support she needed and if that meant she didn’t get washed for days, didn’t do her dishes and ate what she wanted, that was fine as it was her choice. The new manager also closed the communal area in the evenings and Ruth became socially isolated. The new manager also developed her own day care and Ruth lost contact with friends she had had for years. Slowly Ruth became depressed and ended up weighing 28 stone. Her life was under threat. The manager would not listen to family (how many times does this story have to be told).

The consultant psychiatrist felt Ruth needed to go into hospital. I knew my mum and dad couldn’t take her and although I was 8 months pregnant I volunteered to take her myself. We arrived at the hospital. It was an old building with a locked door and bars on the windows. The sleeping accommodation was a dormitory and the bathroom was shared. Ruth was in tears and I was trying to be brave. The door to the ward opened and a smiling nurse greeted us, “off you go we’ll take care of her”.

I don’t know how I drove home. We went to visit Ruth after a week and what a transformation! She was happy and smiling. She looked well cared for. She had lost weight and she had lots to tell us. Ruth stayed in hospital for 10 months. She gained confidence and lost 6 stone in weight. When Ruth returned to her flat, with a proper person centred plan, she was doing well. However the staff did not listen to the hospital staff.

Soon we were hearing again “She’s an adult. She can make her own choices”. Within 18 months we were back to the old ways. Our family was almost destroyed as no one was listening to us. Ruth eventually got to 36 stone and was threatened with a formal admission. At this time I negotiated with the hospital and she returned as a voluntary patient. Ten months later and 12 stone lighter, thanks to the wonderful hospital staff, she moved to a residential facility near to us where she remains.

There are good days and bad but mainly good. Ruth has a beautiful room with a view of the sea. She has always loved boats. When asked about the time in hospital Ruth says there were good times and bad, ‘the staff treated me fairly and listened to me’. I say without the hospital she wouldn’t be here, and our family would have been devastated.

Ruth and Theresa now do training sessions for social workers to remind them that behind every “case” is a family with a story.

We have asked each contributor to provide a photo if possible, but Theresa and Ruth couldn’t get a photo they both liked so they asked me to find a picture of a dog:

Ruth loves dogs. I have told her all about the campaign and she is thrilled to be part of it and hopes our story helps others.

So with thanks to Ruth and Theresa for sharing their experience, we end this post with Chunky Stan, LB’s family dog who you can read more about their relationship here.

ChunkyStan

 

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6 thoughts on “Day 16: Ruth’s story #107days

  1. This business of “It’s her choice” reminds me of 1970s and “Reading readiness” a fashionable idea that all children would read when they were ready. In bad schools this just led to lazy teachers not bothering to encourage pupils to even try. When parents complained teachers would just say they were the experts and the child “wasn’t ready”!

  2. This is so frustrating, the new home manager was oblivious to the mental capacity act then?! Glad Ruth is happier and healthier now. Arch x

  3. What is terrifying though is how much devastation the wrong person, the wrong approach can cause. Not to mention failing to listen to families. And there are no one size fits all solutions – nor any ideal ones, either.

  4. Would the manager have allowed her own relative to make such choices!
    I loved the chunky Stan and LB relationship, I remember reading it at a time my son was really struggling our dog would run to his cage as soon as he heard the school transport pull up to drop him home, I remember think if only I could do the same. A few months later our son was sectioned, if the medical profession had listened to us as a family he may never have got to crisis requiring this and being placed 170 miles from home for 6 months.
    Currently well and enjoying life with the support we said he needed he lives at home, the dog is really chilled with him he spontaneously comes to him , rest his head on his lap and lets him stroke him, reassuring me all is well!

  5. Pingback: #Day 25; taking stock | #107days

  6. Pingback: Day 47: Indignation and initiative vs ‘institutional inertia’ #107days | #107days

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